Need lifestyle information as a young disabled or chronically ill person?
Want product reviews of stylish and functional mobility and independent living aids?
Welcome to Chronic Style Disorder!
Being young and disabled or chronically ill is frustrating! You want to look good and you want the aids you need to help you in day-to-day life to fit your sense of style. Not all these aids are user-friendly. These products have limited functionality and the style is often a complete after thought. I’ve been there, its an infuriating situation. I have spent 6 years trawling through mobility catalogues and websites, finding things that worked, and some that spectacularly didn’t! Now I want to share what I’ve found out with you, so everyone can be live better with disability and chronic illness.
A little bit about my story
My interest in accessibility was sparked in my childhood, growing up with profoundly Deaf activist grandparents. At primary school my best friends were twins with cerebral palsy. Sharing their experiences gave me an early insight to life with a physical disability. Armed with a diagnosis of dyslexia and dyspraxia at 17, I joined several neuro-diversity groups. The sheer number of neuro-diverse people was astounding! At university I participated in disability groups and became involved in campaigning.
After becoming unwell I found myself (someone who prided themselves on their fashion sense) enveloped in a world of NHS standard grey, plastic and cold metal equipment. I sought other young people who were experiencing their own physical, mental or sensory challenges. Searching for relevant information for young people with disability, I found there were few resources. I found many people in a similar situation. One thing we had in common was searching for equipment and accessories that represented their own sense of style. These items were few and far between, and if available often expensive.
It took me 5 1/2 years to get a diagnosis of Ehlers Danlos Syndrome (Hypermobile type). Its been a bumpy ride to this point, yet it has only strengthened my resolve to want to share some of the tips and hints I’ve gathered.
Although I’m not a expert, I’m happy to blog about any related topics, so please get in touch!